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Resource Guide for Chromosomal Abnormalities En Español (Spanish Version)
Address: 4301 Connecticut Avenue, NW, Suite 404 Washington, DC 20008 Description of services provided: The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources. Address: 11 Keats Court Coto de Caza, CA 92679 Description of services provided: This website provides support services, a newsletter, and information about Klinefelter syndrome and other sex chromosome variations. Address: 1275 Mamaroneck Avenue White Plains, NY 10605 Description of services provided: The March of Dimes provides information on pregnancy and birth defects and gives referrals. Address: 666 Broadway, 8th floor New York NY, 10012 Description of services provided: The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services. Address: 233 Canterbury Drive Wallingford, PA 19086 Phone: 1-800-336-GENE 1-202-966-5557 Description of services provided: On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services. Address: 2982 South Union St. Rochester NY, 14624 Description of services provided: This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events. Address: 231 W. Park Ave. Sellersville, PA 18960 Description of services provided: Triple X Syndrome provides articles, prenatal diagnosis information, and contacts for those affected by this condition. Address: 14450 T.C. Jester Houston TX, 77014 Description of services provided: The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition. Address: P.O. Box 268 Lakewood CA, 90714 Description of services provided: This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information. Address: 5700 Midnight Pass Rd., Suite 6 Sarasota FL 34242 Description of services provided: The Prader-Willi Syndrome Association provides information on this condition, as well as resources, support services, links, and publications.
Last Reviewed September 2012
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